JANET WINTER

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Self-compassion to reduce the stress response in ME/CFS/SEID

May 2, 2015 by info@breathingremedies.co.uk 2 Comments

Most lists of self-help tips for ME/CFS/SEID will emphasise that acceptance of the disease is important; the patients who accept rather than push and rail against the disease tend to have a better prognosis. Hostile resistance also increases hyperventilation. These patients may be thinking “but I can’t afford to be ill”, or “what am I if I cannot do the work that defines me”, or “I am useless if I cannot support my family” –and judge themselves harshly.

acceptance

So self- compassion is the order of the day, again something I hear about a lot, but listening to self-compassion expert Kristen Neff’s video I understood it more fully: self-criticism and harsh judgment of ourselves can be considered as part a primitive defence response – a harsh motivator that can help us succeed – but it can activate the fight or flight or sympathetic (threat) part of the autonomic nervous system, releasing stress hormones and contributing no doubt to breathing disorders.

(I wrote a blog post about a link between ME/CFS/SEID and fight or flight or freeze)

So even if harsh self-criticism did not have a role in your disease onset, it may slow down your recovery –it is very hard for someone with such a disease to avoid self-criticism in the presence of such disability and possibly lack of understanding from health care professionals and friends and family who might think that you are malingering rather than sick.

“With self-compassion, we give ourselves the same kindness and care we’d give to a good friend”.

So learning self-compassion can be a step towards switching from “fight or flight” to parasympathetic “relax rest and restore”.

Breathing can be considered to be the bridge between the emotions and the body, and breathing retraining for ME/CFS/SEID also helps calm the sympathetic nervous system and restore a more healthy breathing pattern – where parasympathetic activation is favoured -that can get oxygen more efficiently to all body systems.

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Filed Under: Better breathing and better health, fight or flight, hyperventilation, ME/CFS, oxygenation, SEID, sympathetic nervous system, threat response Tagged With: hyperventilation, ME/CFS, self compassion, threat

Comments

  1. Annette says

    May 3, 2015 at 10:45

    H Janet
    Its great that you are spreading the word! Self compassion is key to being able to accept and be mindful of how things are in the present moment. I teach the official Mindful Self-Compassion programme and was I was trained by Kristin Neff and highly recommend her book ” Self Compassion” and the guided meditation she shares on her website http://www.selfcompassion.org . This work has helped me enormously over the years with bringing the fibromyalgia and chronic fatigue symptoms under control and has been the single most important strategy for helping me live a better and more productive life.

    Reply
  2. info@breathingremedies.co.uk says

    May 6, 2015 at 17:05

    Wonderful Annette! Both self compassion, thoughts and emotions, and the breathing angle can help calm the sympathetic and activate the parasympathetic nervous systems. They complement each other.

    Reply

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About me/ contact

You can sign up to Breathing Remedies newsletter here. Information on posture and breathing and how they affect health.

Or phone me 01663 743055 (Dr Janet Winter)

 

Hello, I am Janet,  a  Breathing educator, (Buteyko Breathing Method) and I help people recover from asthma, allergies, sinusitis, anxiety, sleep problems, headaches, IBS chronic fatigue (ME/CFS) and more, by improving their dysfunctional breathing. Both myself and my teenage son have recovered from ME/CFS, and I want to help more people with these devastating illnesses.

You can contact me here (please leave phone number, landline preferably: 

What I do

Louise Bibby - CFS Coach, Blogger, Author

Louise Bibby – CFS Coach, Blogger, Author

Here is a very brief (3.5 mins) audio introduction to the Buteyko method and DEEP BREATHING; part of an hour-long interview with CFS coach Louise Bibby in Australia – the full interview will be available on her “Get up and go Guru”
site
soon.

Breathing education gently retrains a disordered breathing pattern and helps people naturally recover from breathing-related health problems.

I trained to be a Breathing Educator with Jennifer Stark and Savio D’Souza. Jennifer has been teaching Buteyko for almost 20 years and conducted several of the successful asthma clinical trials of the Buteyko method in the West. (The Buteyko Method relieves asthma symptoms, and has been listed in the UK Asthma Guideline since 2008).
I am a member of the Buteyko Breathing Educators Association and am fully insured.

I am also a qualified postural alignment specialist (PAS) trained by Nicole Lourens of the Egoscue University. Good posture is essential for good breathing and proper function in general.

egoscue023You can find a great summary of Egoscue here.

My background

I had been involved in healthcare/biomedical research for 30 years although previously in a very different role: before training as a Breathing educator, I spent 20 years in drug discovery looking for new painkillers for a major pharmaceutical company based in a London Institute.
I worked as a neuroscientist and cell biologist, directing a team of bench scientists. (So I am not a medical doctor but I have a PhD in Neuroscience) I authored or co-authored more than 50 journal articles and reviews on my research. I have also worked as a medical writer, so have a firm grounding in evidence-based medicine. My professional profile can be seen here on LINKEDIN.

Why I became a breathing educator

If you are reading this because you have CFS/ME, I know what you are going through. I know what it is like to hold onto a job by my fingernails, worried about how we would feed the family if I lost my job, come home and eat and sleep and spend my weekend recovering.
I had no social life. I was lucky to quickly get to a consultant who diagnosed me with candidiasis, and anti-fungals and a yeast and sugar-free diet helped a lot, but not enough.
I felt I had been “written off” and had nothing to offer. I was a mum, partner and employee with massively reduced physical and mental output compared with previously. I suspected my symptoms were “stress related” but they did not ease when I left my stressful job and moved out of London to the countryside.
For me (after trying many different avenues, cranial osteopathy, chiropractic, mercury amalgam filling removal and more – I became a “fat-folder patient”), breathing education worked, it was a big missing piece of my health puzzle, and one I had frankly never considered.

Changing my breathing back to a more normal pattern really helped me. One definition of stress is “anything that makes you breathe more”. And I know now that breathing too much can actually deplete the body of oxygen. And stress can be emotional or physical. Looking back on my history I can clearly see my own physical and emotional stresses accumulating, from a very traumatic bereavement, on-going work and family stresses, then a really bad summer respiratory infection and cough that was not shifted by two different antibiotics (but they probably contributed to unbalancing my gut flora, hence the fungal overgrowth/candidiasis).

A cough seems to be one of the best ways to mess up your breathing pattern, and many of my clients tell me “I was fine until I had that cough/chest infection, and I never really got my health back!!” The breathing centre in the brain gets to think that big volume breathing is normal and unless you know about it, it is sometimes hard to recover. Luckily you CAN retrain your breathing by doing a series of gentle exercises and making some life style changes, and you CAN have hope of better health.
So that is why I do what I do and why I am passionate about it; I found a way to improve my chronic fatigue by better breathing and I trained as a breathing educator so I could help others with this devastating disease. There is so little help out there for them (you?).

Then chronic backache made good breathing impossible, and I discovered postural alignment therapy (Egoscue) to help with that. And I am still amazed at the progress I am making -it’s wonderful to have decreased pain and increased function when I had accepted decline at my age was inevitable. It’s not!



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